I miss having a normal body that works correctly
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For context, I have 3 autoimmune diseases, and as of December 2025 kidney issues now. Back to back issues, back to back infections, hospitalizations, and surgeries. It’s so exhausting. I’m a mom and the primary caregiver to my children and also the house. I have no secondary support beyond my husband but the man works 16hr days and only has 4 days off a month. I’ve had health issues starting at age 12 until now. I haven’t truly known a moments peace where I’m not sick, weak, recovering, or dealing with surgeries etc. I’ve had this stent in since March 30th. And it’s been nothing but pain since then. The stent was placed during PCNL surgery. I had an appointment at the hospital last Wednesday to get the stent removed and to do a final clean out of my kidney and I was hoping after that point I would be done with urinary problems for a while. But because my white blood cell count was too high they wouldn’t even operate and sent me home five hours later. I know it’s only been a few days but I’m starting to wonder if or when they will ever call me to reschedule the surgery I really just want this to be over with so I can try to return to some sense of normal. as it stands right now, I have to go pee pretty much all the time and I can’t fully empty my bladder unless I lean and tilt my hips over to the left side of the toilet seat and it takes a long time to get things going. I’m on antibiotics right now too and antibiotics always make me feel really sick.
Comments (1)
I’m so sorry you’re struggling so much. This is so, so hard. I deal with a lot of the same things as you, and it is exhausting. I have no real advice, but wanted you to know you’re not alone.
Thank you 💕
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