Time to Share My Latest Stone and Story


- Strategy
- Patient journey
I'm 65 and I've had calcium oxalate kidney stones for about 33 years. My Dad had the same as me. Both of us have Medullary Sponge Kidneys where the inside of the kidneys are like a sponge allowing urine to pool and stones to form so we both had many stones over the years.
I've passed dozens of stones over the years with the largest being about 8mm, my wife has a couple of those she saved, oddly lol.
My most recent stone of significance, 4mm or below don't really bother me much, was a few weeks ago and it was a 4.5mm x 6.5mm shown in the picture. On Friday March 22, 10am, I told my wife "I'm going to pretend that pain in my lower right back isn't a kidney stone" and I laughed. By 10:30 I was in enough pain that I couldn't work the rest of the day, luckily I was working from home, I felt terrible. I felt way worse than I should have due to a kidney stone. I was sick to my stomach, which I don't get with kidney stones normally. By 9pm I felt bad enough that I told my wife, let's go to the ER. The doc in the ER ordered a CT Scan which showed the stone had left the kidney and entered the tube wooohooo. He was also convinced I had a virus. He tested for like 5 different viruses but they all showed negative. I told him I'd passed multiple 8mm stones in the past so I left and went home. I continued to feel terrible, no real sharp kidney stone pain though. So I went back to the ER Wednesday, same doctor was there, this time he gave me IV pain meds, Anti nausea meds and antibiotics, then I felt a lot better. Went to the Urologist Thursday morning, not sure why, they showed me my scans and the stone was about 2/3+ to the bladder in the tube. She also showed me each kidney which has like 5 or 6 stones each, as usual lol. She wanted me to come back in 2 weeks to have the stone laser cut, stent placed, etc. I thought, this stone will be gone way before that. Friday night, 10pm, 8.5 days after I first felt the stone move in my kidney, it came blasting out. That was the first time I had FlowMax, that is some good shit!
Doctor sent me home with Hydrocodone, which helps me when the stone is in the tube but does nothing when it's moving in my kidney, Anti nausea medicine, FlowMax and an antibiotic.
I argued with the ER Dr, he said the stone was most painful in the tube and I said it was most painful for me when it's moving in the kidney. He finally admitted he never had one so I feel I won't that argument lol.
Comments (2)
Great post!
Thank you, it felt my post was so long but everyone's experience is different it seems.
Huh, medullary sponge kidney changes everything -- that's a structural thing, not just diet or hydration habits you can tweak away. Thirty-three years of stones means you've probably figured out way more than most urologists see in a career, so I'm curious what's actually kept your stone load manageable despite the pooling. The fact that you're passing them regularly instead of building massive obstructions suggests you've got hydration dialed in, but I'd guess there's more to your approach t...
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