22 years of passing kidney stones and I’m still fighting!

I’m a 26-year-old guy, and this whole thing started when I was 4 years old (2004).

One day my parents noticed my pee was red/brown in color. They panicked and rushed me to a nearby clinic. The doctor gave me fluids and antibiotics and sent us back home. I don’t think they knew about kidney stones in kids back then.

A few weeks later, I started crying and rolling around on the floor holding my belly. My parents were confused and took me to the hospital (Christian Medical College Vellore). Even there, they didn’t take it seriously at first. They figured it was just normal crying from poor digestion or lack of sleep and told my parents to bring me home.

But my dad wasn’t convinced. He got into it with the doctors and almost tried to hit them out of frustration. Finally they decided to do a scan of my abdomen.

They were stunned.

A 4-year-old kid had a 7 mm renal Calcium Oxalate stone.

The doctors apologized to my dad afterward.

They gave me painkillers and lined up a “Shock Wave Lithotripsy” treatment, but the night before the procedure I passed the 7 mm stone on my own.

Years went by, and almost every year I developed stones again. Sometimes I passed them on my own, and sometimes I had to undergo Shock Wave Lithotripsy treatment.

At age 12, I got another stone, but this time it was larger than 10 mm and got stuck in my ureter. Shock Wave Lithotripsy wouldn’t work, so I underwent Ureteroscopy instead. This kept up for the next few years.

Then in 2020, I underwent PCNL treatment for the first time because I had a staghorn stone measuring 25 × 25 mm.

Then in 2022, I passed another stone bigger than 10 mm (image attached below).

https://preview.redd.it/l63au3882u0h1.png?width=751&format=png&auto=webp&s=d554cddb04412dee27db7c7546b3bbe09ca664ad

Again years went by, and in 2025 I underwent another PCNL treatment for a staghorn stone measuring 20 × 22 mm.

This time I brought up the recurring stone formation with my doctor and asked them to find the root cause. They ran hormone tests and genetic tests.

Here's the result: My liver produces more oxalate than my body needs, even if I cut out oxalate from food completely.

Because of this, my doctor prescribed medications. I’m still on them, but I still develop smaller passable stones every now and then.

# ******And that's the end of my f**king experience******

If anyone's gone through similar symptoms or experiences, feel free to inbox me. I can share my reports, test results, and medications.